The
Scleroderma Book : A Guide for Patients
and Families
by Maureen
D. Mayes Mayes has
been treating scleroderma patients for
almost 20 years and combines her clinical
experience and medical knowledge in an
informative, accessible book. Neither the
cause nor the cure of the autoimmune
connective tissue disease is known. She
describes the two main types of
scleroderma; discusses who is likely to
get the malady, which affects the whole
body, as well as sexuality and pregnancy;
and zeroes in on such organs as the
kidneys, GI tract, lungs, heart, joints,
tendons, muscles, and nerves. Frequently
scleroderma and Sjogren's syndrome go
together. Good symptomatic treatments are
available, but they need the context of a
first-rate doctor-patient relationship to
be really effective. Mayes gives
practical suggestions for coping with the
rarely fatal, though discomforting and
frustrating, disease, and she debunks
three harmful myths often thrown at
scleroderma patients by others or
themselves. Appendixes list sources of
additional information and include a
well-chosen glossary.
Robert J.
Riggs, Executive Director, the
Scleroderma Foundation
In the years
that I have been associated with the
Scleroderma Foundation, I have never read
a more helpful, insightful and
understandable work on this very complex
and devastating disease. The Scleroderma
Book is a must-read for anyone who is
diagnosed with Scleroderma or has a loved
one or friend who is living with this
disease. Dr. Mayes provides detailed
information that is understandable to the
lay audience. It can also be well used by
the medical community to help explain the
disease's many manifestations to their
parents.
Wayne State
Univ., Detroit, MI. Resource of
information for patients and families.
Gives a description of the basic facts,
manifestations, and advice on course of
action for those who want children, what
to do if the disease affects your sex
life, and more. For the general reader....Read More
ORDER NOW!
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Scleroderma
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